Paralyzed Veterans of America Blog

Justice for Veterans with ALS

Posted by Dana Kauffman, public relations specialist for PVA on Nov 4, 2019 3:00:00 PM

Proposed Legislation Would Extend Benefits to Families of Our Heroes Impacted by ALS


2019-05-15-15-06-31-1200x800For military veterans, the chances of developing amyotrophic lateral sclerosis (ALS) are two times higher than those who have not served in the armed forces. Sadly, the average life expectancy of an individual with ALS is two to five years after diagnosis.  This is why PVA has endorsed the recently introduced, “The Justice for ALS Veterans Act of 2019.”

The bipartisan legislation, proposed by Representative Gilbert R. Cisneros, Jr. (D-CA) and Representative Brian Fitzpatrick (R-PA), would extend benefits to the surviving spouses and families of veterans who have passed away from ALS, regardless of how long their veterans had been receiving VA disability compensation for the disease.

In 2008, the Department of Veterans Affairs changed their benefits criteria to include ALS as a presumptive service-connected disease. Currently, the dependents of veterans who have a service-connected disability, including ALS, are only eligible for increased Dependency and Indemnity Compensation if the service-connected disability was rated a total disability for a continuous period of at least eight years prior to their death.

 “Survivors should not be denied a benefit others receive simply because the service-connected disease their veterans acquired made it nearly impossible for them to meet an eight-year life expectancy requirement,” said Heather Ansley, PVA’s associate executive director of government relations.

alsblog1PVA has over 600 members with ALS, and the organization has helped thousands of veterans with ALS file claims for benefits and ensure they receive specialized, comprehensive health care through the VA. 

While the cause of ALS still remains unknown, PVA is committed to advocating for veterans with ALS and their families. We urge the U.S. House of Representatives to quickly pass “The Justice for ALS Veterans Act of 2019.”

To learn more about PVA’s support for veterans with ALS, visit

Topics: Advocacy, ALS

About PVA

For 70 years, we have ensured that veterans have received the benefits earned through their service to our nation. We assist all veterans and specialize in supporting paralyzed veterans through monitoring their care in VA spinal cord injury units, funding research and education in the search for a cure and improving care overall.

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